I want to contact one or more clinicians to get more information about a set of participants that I want to collaborate to publish a paper on

Question

I want to contact one or more clinicians to get more information about a set of participants that I want to collaborate to publish a paper on

Answer

Genomics England is keen to foster collaborations between researchers and clinicians. Please use the Clinical Collaboration Request form within the Research Environment; navigate to “Airlock”, then “Forms”.

Once submitted this will be reviewed by the Genomics England team. Please include information that you think would be helpful for the clinician(s) and participant(s) to assess the purpose and benefits of collaborating. Examples of this type of request include: asking for further phenotype information to write a case series; offering functional testing to confirm or refute pathogenicity of a variant of uncertain significance etc. In some cases we may ask for further information to help maximise the quality of requests to clinicians. To publish phenotypic data beyond that which can be exported via the Airlock, clinical photos etc. you will need a collaboration with the clinical team(s) and explicit consent for this.

We will review your request and send it to the appropriate NHS contact. It is the clinical team’s decision whether they follow up with the request and we ask them to contact you directly.

Requests involving greater complexity and large numbers of clinicians or participants may need wider discussion and approval, for example if there is likely to be significant use of NHS resources. We are working on our processes for larger scale requests so this advice may be updated. Please contact Service Desk if you would like to discuss.

Last updated

This page was last updated on the 08 Nov 2024.