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Participant Explorer release notes

v5.5.0 (2023-10-26)


  • Event codes in the medical history timeline can be ordered by code, first or last occurrence (for single participants) and frequency (for multiple participants)
  • Data points in the medical history timeline can be clicked to view the corresponding source table rows in Labkey.
  • Cancer patient journeys can be aligned based on multiple diagnosis codes.


  • RENC-203 An error message is briefly visible when searching for multiple participant IDs
  • RENC-227 Cancer patient journey hides participants when searching with multiple diagnosis code and using the default alignment.

Data release 17 (2023-07-27)

Participant data refresh with main programme data release 17.

v5.4.0 (2023-07-27)


  • SNOMED-CT UK Edition code system and maps updated to version 2022-12-21
  • Improved lookup of cancer disease types from the 100,000 Genomes Project
  • Rare diseases from the 100,000 Genomes Project in medical history timelines now support code grouping


  • RPDS-2013 Unable to search for certain ICD-10 codes and some ICD-10 descriptions do not match the official version
  • RPDS-5401 Accented characters in ICD-10 descriptions are not displayed correctly
  • RPDS-6006 No results for some recruited diseases when searching by concept

v5.3.0 (2023-04-04)


  • Cancer staging data added to all timelines and download functions (Source: NCRAS AV Tumour, SACT and 100,000 Genomes Project data sets)
  • Source table names added to medical history and patient journey timelines and download functions


  • RPDS-5451 Help link points to the old RE user guide
  • RPDS-5194 Download error when including the Sample Date column
  • RPDS-5193 Invalid download column selection after changing the search criteria

Data release 16 (2022-11-03)

Participant data refresh with main programme data release 16.

v5.2.0 (2022-10-06)


  • New columns available for download under "Condition/Observation/Procedure (matching the search criteria)" on the Download tab:
    • Event Date: the date of the condition, observation or procedure
    • Encounter Type: the type of encounter during which the condition, observation or procedure occurred (inpatient, emergency, etc.)
    • Source Table: the source from which the condition, observation or procedure information was obtained


  • RPDS-2375 Download result is frozen after session expired
  • RPDS-2380 Participant ID not found after session expired
  • RPDS-4038 Login failure message is not visible
  • RPDS-4320 Download error when including family case report columns
  • RPDS-4347 Unexpected HPO code grouping in the medical history timeline
  • RPDS-4565 Unexpected empty search term when searching by clinical concept
  • RPDS-4567 "No matches found" displayed before a search is complete

v5.1.0 (2022-08-04)


  • Download all data points from the single participant medical history timeline
  • Download all data points from the medical history and cancer patient journey comparison timelines
  • Download format changed to tab-separated (tsv) instead of comma-separated values.
  • Improved usability of the search interface

Data release 15 (2022-07-07)

Refreshed participant data with main programme data release 15, including the following new data:

  • Cancer diagnoses and morphology codes from the cancer_register_nhsd data set

v5.0.0 (2022-03-31)


  • Cancer patient journey comparison plot
  • Additional cancer-related data visible on medical history timelines:
    • drug groups (sact)
    • treatments (av_treatment)
    • histology (av_tumour and cancer_analysis)
  • Select participants to compare from any search result


  • RPDS-3861 Use specific event date instead of registration date for events other than registration from GEL registration data
  • RPDS-3639 Use decision-to-treat date instead of administration date for diagnoses and morphology from SACT

Data release 14 (2022-02-17)

Refreshed participant data with main programme data release 14, including the following new data:

  • Primary and secondary diagnoses from the Mental Health Learning Disabilities data set
  • Data from the Mental Health Services data set:
    • previous, provisional, primary and secondary diagnoses
    • care activity findings and observations

v4.1.0 (2021-12-21)


  • New search options for all participants:
    • year of birth
    • phenotypic sex
    • life status
    • ethnic category
    • genome build
    • programme
  • New search options for rare disease programme participants:
    • proband/relative
    • affection status
    • family group type
    • family case solved status
  • Usability enhancements to searching by clinical concept

Data release 13 (2021-11-11)

Refreshed participant data with main programme data release 13

v4.0.0 (2021-10-14)


  • Compare multiple participants: view the combined medical history timeline of up to 12 participants
  • Group clinical codes on the timeline based on subsumption

v3.3.0 (2021-06-03)


  • Added case solved status and additional comments for rare disease participants


  • RPDS-1923 Field label inconsistencies

Data release 12 (2021-06-03)

Refreshed participant data with main programme data release 12

v3.2.1 (2021-05-19)


  • RPDS-1925 Code search is not working; ICD10 code lookup is not working
  • RPDS-1492 ICD10 codes with 4 digits (e.g. J96.00) have a wrong parent code
  • RPDS-1882 Redirect to login after session expiry does not work

v3.2.0 (2021-04-13)


  • Added diagnoses and treatments from the NHSE Emergency Care data set (SNOMED CT codes)
  • Timeline control: view by participant age
  • Timeline control: filter by text
  • Timeline control: filter by code first letter


  • RPDS-1505 Body site codes are not displayed on the timeline
  • RPDS-1480 Missing source links for encounters without codes
  • RPDS-1482 Source link for Chemotherapy encounters (to the SACT table) does not work

Data release 11 (2021-02-11)

Refreshed participant data with main programme data release 11

v3.1.0 (2020-12-08)


  • Participant view: added "Genome Sequence" table with information from the sequence report table in the data release: delivery date, plate key, delivery id, genome build, path, type, delivery version and sample collection date
  • Timeline: added sample collection date
  • Download search results: addition of columns from the genome sequence table

Data release 10 (2020-10-19)

Refreshed participant data with main programme data release 10

v3.0.1 (2020-10-19)


  • RPV-177 Medical history timeline is limited to 1000 events
  • RPV-182 Link to Help documentation is broken

v3.0.0 (2020-07-31)


  • The application is renamed to Participant Explorer (previously Terminology Toolset)
  • Search by Participant ID
  • Participant View including medical history timelines

Last update: November 3, 2023