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Participant Explorer release notes

Data release 18 (2024-04-15)

Participant data refresh with main programme data release 18.

Due to an issue with the completeness of data in the radiotherapy dataset in data release 18, some diagnoses and procedures from this dataset are not visible in Participant Explorer. For more information, please refer to the data release 18 release notes and the RTDS table in LabKey, if necessary.

v5.5.0 (2023-10-26)


  • Event codes in the medical history timeline can be ordered by code, first or last occurrence (for single participants) and frequency (for multiple participants)
  • Data points in the medical history timeline can be clicked to view the corresponding source table rows in Labkey.
  • Cancer patient journeys can be aligned based on multiple diagnosis codes.


  • RENC-203 An error message is briefly visible when searching for multiple participant IDs
  • RENC-227 Cancer patient journey hides participants when searching with multiple diagnosis code and using the default alignment.

Data release 17 (2023-07-27)

Participant data refresh with main programme data release 17.

v5.4.0 (2023-07-27)


  • SNOMED-CT UK Edition code system and maps updated to version 2022-12-21
  • Improved lookup of cancer disease types from the 100,000 Genomes Project
  • Rare diseases from the 100,000 Genomes Project in medical history timelines now support code grouping


  • RPDS-2013 Unable to search for certain ICD-10 codes and some ICD-10 descriptions do not match the official version
  • RPDS-5401 Accented characters in ICD-10 descriptions are not displayed correctly
  • RPDS-6006 No results for some recruited diseases when searching by concept

v5.3.0 (2023-04-04)


  • Cancer staging data added to all timelines and download functions (Source: NCRAS AV Tumour, SACT and 100,000 Genomes Project data sets)
  • Source table names added to medical history and patient journey timelines and download functions


  • RPDS-5451 Help link points to the old RE user guide
  • RPDS-5194 Download error when including the Sample Date column
  • RPDS-5193 Invalid download column selection after changing the search criteria

Data release 16 (2022-11-03)

Participant data refresh with main programme data release 16.

v5.2.0 (2022-10-06)


  • New columns available for download under "Condition/Observation/Procedure (matching the search criteria)" on the Download tab:
    • Event Date: the date of the condition, observation or procedure
    • Encounter Type: the type of encounter during which the condition, observation or procedure occurred (inpatient, emergency, etc.)
    • Source Table: the source from which the condition, observation or procedure information was obtained


  • RPDS-2375 Download result is frozen after session expired
  • RPDS-2380 Participant ID not found after session expired
  • RPDS-4038 Login failure message is not visible
  • RPDS-4320 Download error when including family case report columns
  • RPDS-4347 Unexpected HPO code grouping in the medical history timeline
  • RPDS-4565 Unexpected empty search term when searching by clinical concept
  • RPDS-4567 "No matches found" displayed before a search is complete

v5.1.0 (2022-08-04)


  • Download all data points from the single participant medical history timeline
  • Download all data points from the medical history and cancer patient journey comparison timelines
  • Download format changed to tab-separated (tsv) instead of comma-separated values.
  • Improved usability of the search interface

Data release 15 (2022-07-07)

Refreshed participant data with main programme data release 15, including the following new data:

  • Cancer diagnoses and morphology codes from the cancer_register_nhsd data set

v5.0.0 (2022-03-31)


  • Cancer patient journey comparison plot
  • Additional cancer-related data visible on medical history timelines:
    • drug groups (sact)
    • treatments (av_treatment)
    • histology (av_tumour and cancer_analysis)
  • Select participants to compare from any search result


  • RPDS-3861 Use specific event date instead of registration date for events other than registration from GEL registration data
  • RPDS-3639 Use decision-to-treat date instead of administration date for diagnoses and morphology from SACT

Data release 14 (2022-02-17)

Refreshed participant data with main programme data release 14, including the following new data:

  • Primary and secondary diagnoses from the Mental Health Learning Disabilities data set
  • Data from the Mental Health Services data set:
    • previous, provisional, primary and secondary diagnoses
    • care activity findings and observations

v4.1.0 (2021-12-21)


  • New search options for all participants:
    • year of birth
    • phenotypic sex
    • life status
    • ethnic category
    • genome build
    • programme
  • New search options for rare disease programme participants:
    • proband/relative
    • affection status
    • family group type
    • family case solved status
  • Usability enhancements to searching by clinical concept

Data release 13 (2021-11-11)

Refreshed participant data with main programme data release 13

v4.0.0 (2021-10-14)


  • Compare multiple participants: view the combined medical history timeline of up to 12 participants
  • Group clinical codes on the timeline based on subsumption

v3.3.0 (2021-06-03)


  • Added case solved status and additional comments for rare disease participants


  • RPDS-1923 Field label inconsistencies

Data release 12 (2021-06-03)

Refreshed participant data with main programme data release 12

v3.2.1 (2021-05-19)


  • RPDS-1925 Code search is not working; ICD10 code lookup is not working
  • RPDS-1492 ICD10 codes with 4 digits (e.g. J96.00) have a wrong parent code
  • RPDS-1882 Redirect to login after session expiry does not work

v3.2.0 (2021-04-13)


  • Added diagnoses and treatments from the NHSE Emergency Care data set (SNOMED CT codes)
  • Timeline control: view by participant age
  • Timeline control: filter by text
  • Timeline control: filter by code first letter


  • RPDS-1505 Body site codes are not displayed on the timeline
  • RPDS-1480 Missing source links for encounters without codes
  • RPDS-1482 Source link for Chemotherapy encounters (to the SACT table) does not work

Data release 11 (2021-02-11)

Refreshed participant data with main programme data release 11

v3.1.0 (2020-12-08)


  • Participant view: added "Genome Sequence" table with information from the sequence report table in the data release: delivery date, plate key, delivery id, genome build, path, type, delivery version and sample collection date
  • Timeline: added sample collection date
  • Download search results: addition of columns from the genome sequence table

Data release 10 (2020-10-19)

Refreshed participant data with main programme data release 10

v3.0.1 (2020-10-19)


  • RPV-177 Medical history timeline is limited to 1000 events
  • RPV-182 Link to Help documentation is broken

v3.0.0 (2020-07-31)


  • The application is renamed to Participant Explorer (previously Terminology Toolset)
  • Search by Participant ID
  • Participant View including medical history timelines